Friendship is born at that moment when one person says to another:
What! You too? I thought I was the only one
The support parent network exists to match parents who have had similar prem experiences together for support.
If you would like to talk to someone on a confidential basis about any of your concerns or just want a chat, you can contact us on 1300 mypremmie ( 1300 697 736) or email us at contact_us @lifeslittle_treasures.org.au. We will then forward your details to the parent with the most similar experience.
If you would like to be part of the network and be there to chat with other families about your experience then please let us know, as they say a problem shared is a problem halved and taking with someone who truly understands your journey can make things just that little bit easier.
Details: 915gms, apnoea and bradycardia, delay in gross motor development
Born: 25 weeks
Details: IVF with complications, hospitalised for term of pregnancy, severe haemorrhaging. Chronic lung, respiratory & feeding issues, Stage 4 ROP & complications. Home on oxygen. Wears glasses. Is an Asthmatic. Toilet training issues until 5 years of age. Some attention/concentration problems
Suburb: Glen Iris
Mother: Anne- Marie
Born: 24wks 5 days
Details: Weighing 675gms, haemorrhaging and infection behind placenta
Suburb: Ascot Vale
Born: 26 weeks
Details: 955grms & 915grms, home oxygen, chronic lung disease, mild cerebral palsy and glasses.
Baby: Lily & Charlotte
Born: Twins born at 24wks 5days
Details: 685grams & 667grams. Chronic lung, A’s & B’s
Suburb: Hoppers Crossing
Baby: Sophie Louise
Details: 585gms Spontaneous labour due to bicornuate uterus. PDA, feeding issues, long term expressing.
Born: 27wks 3 days
Details: 1140gms, born due to PPROM & Spontaneous Labor. Chronic Lung Disease, PDA, Hernia, Jaundice. On oxygen for 3 months, came home off all oxygen. Spent 110 days in hospital.
Details: emergency c-section weighing 1334g due to severe pre-eclampsia and HELLP syndrome suffered IUGR and sepsis infection. Gross motor issues requiring physiotherapy. Second baby born at 36 weeks due to pre-eclampsia again
Baby: Hunter 35+2 wks & Deegan 32+2wks
Hunter – 1705gms. Preterm Labor, PE, IUGR, Bicornuate Uterus, Fetal Distress. Emergency C-Section with Spinal, 5 weeks in SCN. Sensory Issues, Language/Speech Delays, Social and Behavior Issues.
Deegan - 2133gms. Preterm Labor, BU, PPROM, Placental Abruption, Fetal Distress. Emergency C-Section under a GA (Code Green), 6 weeks in NICU/SCN. Respiratory Distress Syndrome, Jaundice, Grommets due to Hearing Loss and Fluid Issues, Speech and Gross/Fine Motor Delays, Low Muscle Tone
Born: 30 wks
Details: 1600g. Spontaneous labour (Ventalin and bed-rest treatment for subsequent pregnancies). Chronic lung disease, left and right pneumothorax, cerebral haemorrhage. Hydrocephalus with a permanent shunt, very mild cerebral palsy resulting in delay in gross motor development. Epilepsy, now controlled with medication. Now an adult, working with computers. Also has a full-term daughter, Jenny, with Juvenile Arthritis. (now an adult)
Baby: Morgan 35 wks 2 days & Dylan 32 wks 6 days
Details: There were few complications, and she was home at 39 weeks. Required CPAP and was transported to the Mercy Hospital in Melbourne where he went from NICU to SCU and then back to Ballarat and placed in Special Care, he too came home at 39 weeks. Since birth, Dylan has had visits with his Paediatrician on a regular basis with some neurological and hearing concerns.
Baby: Thomas, Joshua, Luke – 27 weeks (Identical Triplet Boys)
Details: Thomas 910gms, Joshua 780gms & Luke 920gms. Born early due to one placenta, TTS – Twin to Twin Transfusion Syndrome. Two babies were intubated and one on CPAP for up to 6 days. 11 Days in NICU followed by 12 weeks in Special Care. No major long term problems or complications.
Baby: Coby & Lachlan (Now an angel) – 29 week twins
Details: 1121g & 1551g – Twin to twin transfusion, sudden unexpected loss of bigger stronger twin after 3 months, un diagnosable metabolic bone disorder, pulmonary hypertension, chronic lung, more than 8 months in hospital (7 months in NICU). Home on drugs, oxygen & with feeding tube. Long term expressing, long term home oxygen, long term NGT and ongoing feeding issues.
Suburb: Point Cook
Baby: Samuel – 23 weeks
Details: Weight 668grams. 116 Days in hospital. No known reason for pre term labour although Mum a Type 1 Diabetic. Ventilated for 33 days, PDA, NEC, Grade 2 bilateral intraventricular haemorrhage, hyaline membrane disease, collapsed lung, numerous infections whilst in hospital, Stage 3 ROP requiring laser surgery, reflux, some early eating problems, minor delays with motor skills, toe walker, some attention/concentration problems.
Details: Mum: emergency c-section due to severe pre-eclampsia; milk never came in. Baby boy: in SCN for 5 weeks, IUGR (1.4kg), 2 x VSDs (holes in heart) with heart murmur, all self-healed by 18 months. Very severe hypospadias, requiring 3 major operations plus an orchidopexy. Duane’s Syndrome (rare eye movement condition). Ear tag, requiring removal. Delay in walking, requiring some occupational therapy. Asthma and eczema.
Parent: Meaghan & Alex
Twins: Milly-Rose and Lachlan
Details: Born at 24 weeks, weighing 545grams & 622grams, pre term labour at 22 weeks, over 189 days in hospital,chronic lung, PDA ligation, bowel perforation & stoma, pneumonia, oesophageal perforation, respiratory failure on numerous occasions, ongoing dexamethosone steroid treatment, home oxygen, twins separated and across two different intensive care units for 4 months, pneumothorax, incubated for 8 & 9 weeks, long term CPAP, numerous infections, gross development delay, vocal palsy due to severed laringiual nerve, lung collapse, ongoing early intervention for speech, occupational therapy etc, picu admission post nicu discharge,
Suburb: Oak Park